I know I haven't updated in a while. I kept meaning to, and then I start doing something else, or my thoughts get interrupted, and I just never get through an entire post without scraping it. I can't believe Eden would be going on 5 months already. Time goes by so incredibly fast. They said it goes by faster as you age, but I guess I never believed it when I was a kid.
The Life of Eden Marie
Saturday, April 13, 2013
Saturday, January 19, 2013
Quick Update
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| My most recent donation - 238 ounces. |
Monday, January 7, 2013
What's Missing From Folic Acid Awareness Week
As I got on Facebook yesterday and scrolled down my newsfeed, something caught my attention. Somebody posted that Folic Acid Awareness Week is January 6-12 this year. They posted some information from the National Counsel on Folic Acid. I went onto the NCFA website and started reading some things, and the site talked about supplementing folic acid, and eating folic acid fortified foods (like cereal, pasta, bread, etc.) to get enough folic acid and prevent neural tube defects. It seems like a great website, and a great cause. And I mean, it sort of is, don't get me wrong - the research clearly shows that supplementing folic acid has reduced neutral tube defects by a significant percentage... but at the same time, I took the recommended 800mcg of folic acid my entire adult life religiously, every. single. night. I ate TONS of "fortified" cereal, bread, and pasta from the time I was a small child, into adulthood (and unfortunately, I'm sure it's part of what helped me pack on the pounds I'm fighting to lose now). I should have had plenty of folic acid in my system, and that would mean that I should never have had a child with a neural tube defect...right? Except I have a gene mutation, a compound, heterozygous MTHFR (aka, Methylenetetrahydrofolate Reductase) gene mutation to be exact. I could take hours to try to explain all that I've learned about what this means in regards to your health, pregnancies, etc., but I will try to keep it simple and to the point - this post is about MTHFR and folic acid.
Sunday, December 30, 2012
An Update
I know I haven't said much lately. I should, but time's just gotten away from me. It's hard to believe it's almost 2013. This month has been busy and full of distraction, but when things slow down each day, I still cry for my daughter.
Tuesday, December 18, 2012
Daddy's Perspective
I was at work when Virginia text me that she was having
labor pains. That moment I got excited, but Virginia told me not to get too excited
yet. I mind was on her the entire day, and I started making plans in my head of how
I was going to hurry home and get her to the hospital. At about 4 pm, Virginia
text me that I needed to get home so we could get ready to head to the
hospital. I told my boss I needed to go, and he let me off a few minutes early.
I logged out of my computer, but learned later I’d forgotten to log out of the
phone system. I accidentally left my phone on the “back to desk” setting. Oops.
Labels:
anencephaly,
baby,
birth story,
birthday,
Daddy,
Eden Marie,
girl,
God,
labor,
love,
photographer,
the life of eden marie,
time,
transverse
Sunday, December 9, 2012
Missing Eden
We miss Eden so much... I can't believe that she would have already been 2 weeks old tomorrow. Time goes by so fast, and already details from her birth and short time with us are getting fuzzy. I cry daily, more so at night than during the day. I guess I keep busy enough during the day to stay distracted, but things slow down in the evening and my mind is filled with thoughts and memories of our little girl.
Labels:
anencephaly,
donating milk,
Eden Marie,
God,
love,
pictures,
pumping
Sunday, December 2, 2012
Eden's Memorial
Saturday we opened up our home to friends and family that were able to come and celebrate Eden's life with us. My dad made a really beautiful picture video that we played all day long on the television, and people filled our living room and kitchen. We told people anytime after 10, and most of everyone who came arrived just after 10 - at one point we had over 30 people in the house at once!
Labels:
anencephaly,
baby,
balloon,
balloons,
blessed,
blessings,
Eden Marie,
God,
hope,
love,
memorial,
pumping,
the life of eden marie,
time
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